From: Reframing data ethics in research methods education: a pathway to critical data literacy
Action guiding principles | Definition | In scholarly literature | In frameworks |
---|---|---|---|
Respect autonomy | This aims at enabling people, primarily as individuals, to make informed decisions about the potential uses of their data, through the concept of informed consent and transparency. In this case, informed consent needs to go beyond data collections, but clearly describe how and by whom data will be used and how the results will be published | Al-Nuaimi (2020), Buckingham and Crick (2016), Powell (2018), Wheeler (2018), Sloane (2019), Kumar et al (2020), Véliz (2019) | Data feminism CARE Principles for Indigenous Data Governance Global Data Ethics Pledge General standards for data governance Federal Data Strategy Data Ethics Framework Data Ethics Principles Good Practice Principles for Data Ethics in the Public Sector Universal principles of data ethics Our Principles (SAS) |
Respect privacy | To consider that some issues should not be part of the public sphere or a matter of public concern, people have a right to withhold such type of data unless there is a commonly agreed overriding reason for publicity (e.g. additional income by politicians) | Richards and King (2014), Yao-Huai (2005)., Pollach (2005), Schwartz (2011), Herschel and Miori (2017), Zimmer (2010), Lundberg et al. (2019), Stahl and Wright (2018), Véliz (2020) | Global Data Ethics Pledge Australia’s AI Ethics Principles General standards for data governance Federal Data Strategy Universal principles of data ethics Our Principles (SAS) |
Promote fairness | This asks to treat like cases alike, and recognises that we may have to make special arrangements so that no one ends up undeservingly disadvantaged Researchers must assess and decide whether those being directly or indirectly involved or affected in or by the research will be endangered, exposed, put at risk, unjustly treated, profiled or classified in a derogatory manner regardless of the interests or intentions of the researchers | Jo and Gebru (2020), Stoyanovich et al. (2018), Hoffmann et al. (2018), Richterich (2018), Ienca et al. (2018), Hand (2018), Bertino et al. (2019), Jobin et al. (2019), Johnson (2014) | Data feminism CARE Principles for Indigenous Data Governance Global Data Ethics Pledge Australia’s AI Ethics Principles Data Ethics Framework |
Address equality | This means that rules should apply to all unless there is a publicly acceptable reason for exemption. It refers to the legal concept of equality, which means that every person has the same rights and should be treated in the same way regardless of their personal characteristics | Tusinski Berg (2018), Bogroff and Guegan(2019), Bezuidenhout et al. (2020), Kazim and Koshiyama (2019), Puaschunder (2019), Corple and Linabary (2020), Johnson (2014) | Data Ethics Principles CARE Principles for Indigenous Data Governance As compliance and accountability for all: Data Ethics Principles General standards for data governance An Ethics Framework for the Data and Intelligence Network Good Practice Principles for Data Ethics in the Public Sector Data ethics framework Universal principles of data ethics Australia’s AI Ethics Principles Our Principles (SAS) |
Do no harm | This is often also labelled as non-maleficence, and refers to preventing data uses with negative consequence, for instance, by directly exposing or allowing the identification of individuals and groups | Raymond (2017), Kitto and Knight (2019), Loukides, Mason & Patil (2018), Berman and Albright (2017), Taylor et al. (2016) | CARE Principles for Indigenous Data Governance Global Data Ethics Pledge General standards for data governance Data Ethics Framework Universal principles of data ethics Australia’s AI Ethics Principles Our Principles (SAS) |
Promote sovereignty | This means that subjects, both at individual and collective level, should be in a position to decide when and what data they wish to disclose and to whom, and that a refusal to share data, should not impede or obstruct their access to key information or to participate in political, cultural, scientific and economic life, and to welfare, education and health services. It also recognizes that affected people are the best advocates for promoting their own interests without misrepresentation | Kukutai and Taylor (2016), Walter and Suina (2019), Kukutai et al. (2020), Snipp (2016), Lovett et al. (2019), Ai-min and Jia (2015), Hummel et al. (2018) | CARE Principles for Indigenous Data Governance |
Address bias | Epistemic structures influence the way we think about certain people and objects, sometimes giving them undeserved advantages or disadvantages It refers to avoid portraying individuals or groups through prejudiced or predetermined ideas to influence decisions in a certain direction. Many claim that we all have biases, and that there are in a certain degree unavoidable, so we need to take action | Richterich (2018), Henderson (2019), Herschel and Miori (2017), Ienca et al. (2018), Mittelstadt et al. (2016), Buenadicha et al. (2019) McDonald and Pan (2020) | Data feminism Global Data Ethics Pledge General standards for data governance An Ethics Framework for the Data and Intelligence Network |
Challenge power structures | Support individuals to confront and challenge existing power structures that exist to limit who can decide, and for how long their decision stands, and who can be forced to comply with those decisions within society, government and communities | Taylor (2016), Heeks and Shekhar (2019), Atenas et al. (2020), Dencik et al. (2016) Dencik and Sanchez-Monedero (2022) Goldkind et al. (2021) | Data feminism CARE Principles for Indigenous Data Governance As balancing power: General standards for data governance |